• Sharing the Light

    Had an interesting conversation today with a supposed friend. 


    My daughter asked her daughter (both are High School Sophomores) to come with us to a faire this weekend. My son was willing to give her his ticket. 


    Well, this “friend” proceeded to insult the concept of the faire and my spirituality as well. The faire is a spiritual fun event, similar to a spiritual Woodstock. Live music, entertainment, vendors, spiritualists, food and drink (no alcohol). She said the faire will stir up the “devil in people.” She has never been to this faire before. Her daughter is very ill with an eating disorder and is interested in attending with my family. We were trying to bring her with us somewhere positive and full of light. 

    The whole conversation brought to light how people judge what they don’t understand and instead of trying to understand it they would rather shame it. Similar to how people with a mental illness are treated.

    Her daughter is very ill with an eating disorder. She needs to go into residential treatment for it. I hope she doesn’t carry shame and prevent her daughter the treatment and understanding she deserves. She is not open to talking about it in great detail. We need to not be afraid to talk about mental illness. We need to not be afraid of the implications or stigma. If we don’t talk about it –NOTHING WILL CHANGE.

  • It’s reading time…

    My passion is writing and speaking about mental health but I also spend a lot of time reading and researching about mental health. Here’s some books I have my eye on to check out. Let me know if you’ve read them and if they enlightened you. As they used to say in my elementary school, readers are leaders!

    I did see Silver Linings Playbook with my significant other.

  • Death

    I had a death in my immediate circle recently. It was an ex-boyfriend who evolved into a close friend and confidante.

    The grief hit me hard. I couldn’t concentrate and I was engulfed in sadness and regret. We had a story together that was suffice to say, unconventional, but it was our story. Yes, our star-crossed story.

    His ex-wife and grown children blamed me for the break-up of his former marriage. In their distorted view, if I hadn’t appeared in his life, he would have agreed to return to his loveless sham of a marriage for longer than the 20 years he already participated in it. He decided to leave his marriage of his own accord, for his own happiness.

    And we were happy. For years, seven to be exact. People that knew him said he was never happier. Pictures show him laughing and smiling. Unfortunately, life was just a mess for both of us through those years. We were each other’s solace and escape. Most importantly, we were friends. We were best friends. We spoke the day he had that fateful stroke. We spoke about both our lives and our futures and when the conversation was drawing to a close, we didn’t know how to say goodbye to each other. It would be the last time I heard his voice in this lifetime.

    His death devastated me. We had been there for each other for years and now he was gone. His family was cruel to me during his impending death too. His vascular and heart problems that we didn’t know about had now left him paralyzed, unable to talk or swallow. His family let me know about the stroke but then thwarted me from seeing him in the hospital. A mutual friend was allowed to visit him and I asked her to let me FaceTime with him, which we did. He communicated with me by blinking. He told me he wanted to see me, alas, he died a few hours later. I know he wouldn’t die until we saw each other, albeit on a screen.

    I never really knew how depression could leave someone so unmotivated until this experience. I fell behind in my work and household chores. I felt like I was alive but as a spectator only. I think I finally understood more about depression than I ever did. His death also tested my faith and spirituality. I realized that I had to let my sadness and despair run it’s course. There were no words that anyone could say that would snap me out of it. As I moved more to center I understood what my significant other and son have been telling me for years. Just be there for us and let us work through our emotional pain. I used my grief to understand their mental illness journey better.

    I do plan on holding a memoriam for him around his birthday. I will celebrate his life and the life we once shared.

    I appreciate all the lessons he taught me and the kindness he showed towards me and my family. He understood my son was not always well and supported me through it. I am forever grateful.

    RIP RC, always in my heart.

  • Unconditional Acceptance

    We went to a couple that does does couples counseling together. We chose them because they were also spiritualists and the husband is a psychologist. They were married 53 years, with a son my significant other’s age. There were other synchronicities as well so we thought we found therapy heaven. Alas, as most therapy sessions go with us-the therapists just love to focus on him. The psychologist specialized in men’s issues and a man with bipolar disorder was like hitting the issue jackpot. We had an interesting four-way conversation initially, with me discussing what I wanted to accomplish as a result of the session(s), then it slowly changed into the man show. My man felt really bad as he was asked about his childhood, his father, his condition, etc. and I was asked about nothing. He went to this couples counseling session for me, for us, and it was steered by yet another therapist to fix him. He felt that they thought he was the root of any issues and as a result he needed all the help. We did tell them we were there to strengthen our communication with each other. Ok, I admit it, I was really there to strengthen his communication with me. Maybe they were onto something, I don’t know, but I wanted to be asked about my bad childhood too.

    We did learn something from the session though, the term Unconditional Acceptance. Well, two things, we didn’t need a second session with them.

    What is Unconditional Acceptance? Accepting things as they are without a condition attached. In other words, I accept that my man has bipolar disorder and all that has and can come with it. Why? Because I love him. That doesn’t mean there are not some conditions involved, like he must take his meds and he must control his anger. I also have a lot of expectations for him as well, which include that he must participate in the house chores and no feeding his impulsivity since it could lead to mania.

    But I try to be realistic with my expectations of him. He may never work full-time again and that’s ok. It’s just too difficult for him to maintain. I do expect him to work part-time in a job that suits him. I also don’t expect complete stability all the time from a partner with bipolar disorder, that would be impossible to make happen but I do expect as much stability as possible. I do help my partner by trying to teach him healthier coping and functioning mechanisms that maybe he just can’t see clearly for himself. I don’t do anything to enable him but I help him out of love for him and wanting him to be the best person he can be. I’m not his mother or caretaker, he’s my partner. I have empathy and understanding but I’m tough too with him when he needs it. I also expect the same towards me as needed. I guess giving to my partner doesn’t bother or effect me as much. I get my needs met in my relationship and I don’t permit myself to be taken advantage of by him or by anyone else for that matter.

    I unconditionally accept him and he unconditionally accepts me. It works for us.

  • The Restless Mind of ADHD

    He was such an adorable little boy. Red hair with brown eyes that sparkled. My first-born child. I was in my mid-30s when he was born, and I believed I was ready for the challenge of motherhood. When I was pregnant, I had visions of this perfect little angel, wearing perfectly pressed clothes, meeting all his milestones early. I had even practiced saying his first and middle name over and over to see if it sounded professional and regal enough.  

    I did my first pregnancy test on September 11, 2001. Yes, that 9/11 and the test showed positive. I was so excited–I was pregnant! I called my then husband to spread the good news then headed off to work in downtown Manhattan. I worked across the street from the World Trade Center on 9/11/01. Well, as you can imagine, that day went badly. I ran for my life protecting my unborn baby that I only knew existed starting that very day. That’s how my son first announced himself to me and the world.  

    When giving birth to him, I opted for a natural delivery. We were almost there, the doctor even said to me “he’s a red-head” but then things started to go badly. He wasn’t positioned right for the delivery and couldn’t be turned. He was transverse. In layman’s terms, he was lying sideways in the birth canal which requires a C-Section. My boy had finally entered the world, albeit by force.

    His pre-school years were marked with difficulties relaxing, being aggressive and mischievous and walking around the pre-school. Most notably, he just couldn’t learn quickly. He struggled with potty-training, spoke later than expected and no matter how many reading lessons he received it was just not happening. I was starting to get nervous. What’s wrong with my son?

    Elementary school provided all sorts of new challenges for him. He still walked around the classroom and couldn’t focus on the lessons which made him become frustrated and even more aggressive. He just didn’t want to go to school anymore. He wouldn’t wake up easily in the mornings and he would spend his time in school in the nurse or guidance counselor’s offices. We tried everything to make him want to go to school and learn. Better diet, re-taught him every lesson at home at night, did reward charts in conjunction with school. Nothing worked to any great degree and it was hard work to maintain. In second grade, it was just getting even worse. You could tell he was trying hard but there was a wall preventing him from succeeding. I called a neurologist. What’s wrong with my son?

    My son was diagnosed with Attention Deficit Hyperactivity Disorder (ADHD). It was determined that he had low “H” though. The next steps, to medicate or not. I deliberated about it a lot. I’m the type of person who won’t even take an aspirin for a headache, I just tough things out. I didn’t think though that we could just tough out this condition. He was placed on a low dose of Focalin at that time. I was defeated and sad. My boy was not as perfect as I had dreamed. He had a medical condition that affected his brain. As I sat crying the next day, my son came over to me and handed me a waffle he was eating. He placed blueberries to make eyes and a mouth. The mouth was smiling. He then told me, this is the first day I am happy–thank you Mommy. Wow. He needed the medication after all. I felt a sense of relief and vindicated as a mother.

    My son is now 18 years old. He has been on ADHD meds (or as he calls them, his “thinking pills”) consistently since the second grade. He capped out on the Focalin dose and moved to the Vyvanse family. He capped out on that dose too. He is now 18 years old and on Adderall. He still struggles with his ADHD. While in High School, his assignments always looked disorganized and his bookbag in disarray. His thoughts were there but the organization was way more chaotic. He hated reading books or studying, he just couldn’t stick with it.  I bought him e-books, or he used Spark Notes. He was tested for a learning disability, but he does not have one. If he’s interested in something, like video games, computers or music he is brilliant. Did I mention he was captain of the drum-line in a winning high school marching band? As an ADHD mom, I didn’t have many academic bragging moments, so I became his greatest musical champion.

    As he is becoming a man in his late teens, he is still notorious for losing and misplacing things- which gets worse as the dose needs adjusting or as medication needs changing. He gets easily distracted at times and requires some adjustments and guidance to stay on track. He can be impulsive as well. He dropped out of college after one semester, there was too much reading he said, and he is now enrolled in a top-notch trade school. He always learned best with his hands. I always called him my tactile learner. He sits near me and listens to his trade school zoom lectures sometimes. To me, he still reminds me of that second-grade boy trying to learn addition except now he stares at the ceiling, plays with his pencil and looks at his phone.

    He just passed an important HVAC proficiency test. No studying, just listening and learning with his hands. He will have a lucrative vocation after all.

    You’d be surprised what you can do even with a restless mind.

  • That Damn Phone!

    Escape, entertainment, distraction, soothing, sleep aid…that damn phone!

    My teenagers are always on their phones but my folks with bipolar are ALWAYS and a day on their phones. The phone interrupts true conversation and intimacy. The phone is used as an escape from their lives. The phone distracts their busy minds with useless noise.

    The phone is their pacifer.

    The phone can bring some terrible stuff into the bipolar fold. Violent videos, gaming, porn, the opportunities to cheat, avoidance of responsibilities, online gambling. Excess and destruction all around. Add in mania and you have a recipe for disaster.

    How do we get them off their phones? They need to be called out and engaged. They need to know that the phone does not solve any problems or cure them, it is merely a distraction from the truth of their lives. There is no panacea to feel better. It takes treatment, medication, therapy, good supports and time to form better coping patterns and mechanisms.

    When I look at those phones, I see pain. I see anguish, I see isolation.

    I truly hate the damn phones!

  • Pressured Hearing

    There is a symptom with bipolar that is called Pressured Speech. It happens when a person has an extreme need to share their thoughts, comments, and opinions, often loudly and with peculiar sugues. It usually happens during BP1 mania or hypomania.

    The worst part about pressured speech is having to listen to it! The ideas and visions run the gamut from, that would be an interesting thing to pursue to there is no way in this universe that you could pull that off. The many phone calls made are usually loud (unless there is a shame or sneakiness factor involved in which case they are noticeably lower) and to promote an agenda.

    Now don’t get me wrong, I fell in love with my man’s ideas and visions. He shares a lot of my eccentric, cockamamie ideas. It’s when the plans are unrealistic or disjointed that I begin to worry about him.

    There’s enthusiasm for an idea and then there’s the all the systems go, talk to everyone in your contacts (even past enemies) to run your ideas passed them. That’s when I’m a supporter of curbing the enthusiasm.

    Luckily, he has begun to run ideas passed me to see if they pass the smell test. Ultimately, he knows what’s a good idea and what’s not but I feel he is testing himself now. Lots of past years of unmedicated mania would leave anyone questioning their own judgement.

    I can’t imagine what it must feel like not being able to control your mind and trust your own ideas.

    Boy, do I wish there was a cure.

  • Anosognosia

    I spend some time on bipolar support groups, chatting with other family members or folks that have bipolar. I asked a question to the group about why my significant other is resistant to including me in his treatment plans or therapy sessions. An articulate middle-aged man who struggles with bipolar gave me a piece of the answer through this great word: Anosognosia.

    I have called myself the bi-polar whisperer but even I had never heard of this term before. Let me enlighten you to it’s definition:

    Anosognosia is a lack of ability to perceive the realities of one’s own condition.

    The term can be used for any condition both physical and mental. When I continued reading about it, I found out that 40% of people with bipolar disorder have anosognosia! Wow. It all made more sense to me now. He just doesn’t realize the gravity of his condition and how it impacts the people around him. I think it’s more than that too. It’s a control thing. I’m assuming it must feel like I can’t control my emotions and now I can’t even control my doctor visits? As an outsider, it’s all hypotheses and speculation and I would suppose different for each person with bipolar disorder.

    I wish I’d known about this term years ago when I began participating in my son’s psychiatrist visits. The way he would describe the circumstances and consequences of his behavior and how I would describe the same ones, would always be vastly different. I thought is was his shame. It was his perception. Wow again.

    Bottom-line is….I live with the bipolar behaviors daily. I ride the waves of their depression and fear. I ride the too enthusiastic enthusiasm roller-coaster too. I’ve earned a seat at the table. As a friend of mine always said, “you gotta own your shit to improve and move forward.” If you can’t even see all the shit clearly, how are you going to improve and move forward?

    Be grateful that there are people who care and want to be involved. Sheesh, you think I enjoy doctor’s visits? Fuck no, but I do enjoy helping you feel better.

    Anosognosia is my word of the week. Now if only I could pronouce it.

  • Let’s Mind Mental Illness Together

    Welcome to my blog!

    I am a Mental Illness Advocate but most importantly I’m a loved one to people diagnosed with a mental illness. I have watched and walked with my loved ones as they have navigated the cruel world of mental illness.

    I have lived through the school of hard knocks with mental illness. My now estranged sister, my teenage son and my significant other all have struggled with mental illness. I have had mental illness orbiting me my whole life. I have witnessed what mental illness does to a family and to the people trying to manage it. I have seen my loved ones in psychiatric hospitals, threatening suicide, aggressive and violent, depressed for months, unable to work, unable to go to school, resisting treatment, unmedicated, undermedicated and overmedicated.

    The only thing that has kept me going at times was love and hope. The love for that person and the hope for a better tomorrow.

    I have cried. I have worried. I have prayed. Mostly alone.

    But I believe I have been chosen. Chosen to tell their story and importantly the stories of those who support the mentally ill.

    Join me on my journey.